Governor's Planning Council on Developmental Disabilities
Unequal Justice?
Assertive Intervention, Diversion, and Alternatives Needed by Robert Perske
From the Editor: The following article is derived from Robert Perske's new book, Unequal Justice? What Can Happen When Persons with Retardation or Other Developmental Disabilities Encounter the Criminal Justice System, Abingdon Press (1991). Information on how to purchase this new release is mentioned at the end of the article.
It can happen quickly. Every now and then, people with mental retardation or other developmental disabilities are arrested for mimes they did or did not commit. Perhaps we have know such a_.... we watch at a distance . . . we may fail to see tlyu the farther they move from us, and the more the criminal justice system absobs them, the harder it becomes for them to return to theit home communities. Many such people become the loneliest; most friend- forsaken @isoners the system ever sees--and they are kil.@d.
The criminal justice system often functions like a ratchet. After en arrest, officiak move a defendant through various stages (e.g., `interrogation, xmen~ indktmen~ b@, pretrial hearings, etc.). With each movement, the system clidca, ,moving a person down a one-way path, deeper into the bowels of the system. The more often the system clicks, the harder it is for a person to get out. Sometimes the clickings occur more quickly when the defendant possesses . retdatm or similar disabilities. The erirninal justice system is a confusing place. It doeso't even know what itself is about. It is torn between rehabilitating, punishing, and deterring people. The system isn't always rational. Sentencing practices can be arbitrary, dieerimina~, and generally unprincipled. hey are ofteg governed by the subjectivity of the judge and influenced by the current vxillating public feeling about any given offense. Some members of the system, nevertheless, are educable. More often than not, they are eager to do righg to 1- -t tk people they are dealing with..., (Dolcaes Norley, 1984)
One or more of the following factors might influence offi~ who possess Mtie training in understanding people wiih mental disabilities (misunderstood responses which result in getting into deeper trouble with the law):
1. An Inordinate desire to please attthorlty figures: Being less able to solve everyday problems, some people with mental disabilities attempt to gain the fliendehip of authority f~ums who appear to be good pmbk-m-sokrs, which ean be dangerous. They work eagerly to make friends. "Some people will seek the approval of these authority figures even when it requires giving an ineormct answer," says professor Ruth Ldraseon. .
2. Inablllty to abstract from concrete thought: Ttw IW fail to wkrsund the ibytraet meaning of !he term "right." They may think they are being asked to "wave at the right" rather than at the wrong. Others may think ithas to do with right versus left. Theyf ail to catch the abstraction that they are giving up their constitutional rights as a citizen.
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AT&T Introduces New Line of TDDs
Two new models of TDDs (Telecommunkahon . Devices for the De@ were recently intmfuced by AT&T and til be available fer the fti time at any of AT&T's 400 Phom? Cemters.
The AT&T 2930 is an advanced model about the size of a VCR tape for people who need a portable TDD or a computer terminal. It has some of the following features: 1) compatible with ASCIl computer foimat for using ekctmnic mail; 2) has 32K memory (equivalent to 10 typed pages) that can stole eonversatione, compose memos, and create a phone dimctmy; 3) eighty character display; and 4) a synthesized voice that tells a hearing person a TDD is ding.
The AT&T 2700 is a simple-to-use, lightweight unit with a flexible acoustic coupler for the telephone handset and a port for connecting to an external printer. Its high-sensitivity switch eliminates possible errors due to noisy telephone lines. Call Southdale Phone Center: 61 Z920-3707 (VtiC43); 612/920-3124 (,'I'DD).
Resource
The Connection, a bimonthly newsletter of the American Society on Aging, provides a dual focus--aging and mental retmdah "on. It features both state and national public poky issum. Subscription: $25 per year. Contact The Ameriean Society on Aging, 833, Market Street, Suite 512, San Francisco, CA 94103-9853.
Inside This Issue...
Minnesota Awarded i%deral Grants
Pediatric Residents' Program Introduced at University of Minnesota
Yourth community Services Workshops
Council To Participate in National Family Support Project
Duane Shimpach, Chair of the Minnesota Governor's Ptanning Council on Developmental Disabilities, recently announced that a grant has been awarded by the Administration on Developmental Disabilities, Department of Health and Human Services in Washington, D.C. for a national project called "Strengthening Amercian Families through National and Grassroots Strategies." The Minnesota Council will join the Texas Developmental Disabilities Council, Association for Retrded Citizens--United States, and the World Institute on Disability to promote family support policy and services. The grant is $197,000 per year for two years.
The project will develop a nationai repositmy on family supporq self-advocacy, and empo wermeng and will develop a set of quality indic.atom through a consens~ conference. In addition, Partnem in Policymaking will ~ replicated "k24 additional states, and existing Partners, coordinators will be convened to discuss curricula and national evaluation strategies.
Pakent C~e Management Project, Smnmary Repoti"
The@nt CaSe Management Pro@t (funded by the Go Vemor's planning Cmlncil on Developmental Disabilities] was devebped to empower individuals with disabiMiesa@ @irpaq!wnd/br . . m~s. hkinypeqi~f iomtliroughout Minnesota have participated innumerous training sessions sponsiwed by the Project, The goal is to participate more fully in the ~~ of-"~d ~ To receive summaiy inf6rm@on, contacc Marijo Mc,Bride;"Institute on Community Integration (UAP), 6 Rime W, 150 Pillsbury Drive, SE, Minneapolis, MN. 612/624-6830. Information on Children ` Anyone can cdl fke fw information about community aervica and resources for infants with disabilities and special health needs. Call Monday through Friday, 9:00 a.m. to 5:OOp.m., Eastern Time: 1-BOO-922-9234. Continued from page one, Unequal Justice 3. Tatdrtg cl!ms fmm Irttwrogators: Being dependent upon others forleaming v, do things the right way, they searctt for "correct" answers. Even when the; guess, their mqonses often catry a ring of truth. 4. Bluffing greater competence thafi ona poeaesaes: As Robert Edgerton dischxed in The Cloak of Competence (1967), they struggle to mainrain self- esteern by hiding their incompetence. 5. Art all-too pleasant facade: smiling is interpreted by p-tom as lacking remmse. 6. Abhorrence for "the term "mental retardation't This teim wounds some people so deeply, @ey will do almost anything to @connect themselves fmm it. Not being called retarded might enrich the~ lives in the commu~, but in thei?inihw - system, if* word isnaus'wwey,.miglk~ ~ killed. 7. An unateady gait and struggling speech: such as, people with cerebral palsy mistakenly amsted for !x$ng under the influence of drugs or ~cohol. Other misunderstood responses include: real memory gaps; a quickness to take - blaine; impti judgemen~ proble@ with receptive .md expressive hingUSge; short attention span; uncontrolled impul~s end an inability.to understand rights, court Proceedings, or* punishment. It is easy to see how @w enfomement officers could misread the responses of persons with di@ilitiesi. Even so, if they really understood, they might take these factors into conside~on, esjwcially when no motive or physical evidena ? can k tied to the defendant. Dolores Norley, a Florida mother of a `son with mental retardation, lawyer, and police trainer since the early 1950s, observed, "When persons with retardation enter the system, it is not just a crisis, it is a disaster. I @ow of no in~llectually diminished person who has returned from prison an improved -.. ". You have a per@tly trained recidivist." Norley never seems to operate like a wildly aimed howitzer. Instead, she spies a speciilc injustice, does "homework" on it, and then takes aim at the problem. The first step is to educate the police and the courts. (The curricula she develop@in 1972 is still widely use&throughout the comitry.) Second, those who work with j@cms having retmdation &ed educating, too. @3xample: a teenager with retardation @ Florida, asked his teacher about a matter concerning sexual development, ended up in a penitentiary with a 30 year sentence.] The earlier a person tith retardation is diverted from the system, the better. More of us in the field must become assertive interveners, "I w@i as an intervener with no status," said Norley, "and it works because the courts are desperately looking for any help they can get." "The sad face Nine out of ten timesl it is the lack of alternatives--not the nastiness of the court--which sends our pmple to miserable kmxation where they'am the prime victims of others there. We must create alternative programs," Norley didamd. Anatharnote from the Editor: To doadaquate justieeto l.hrequa/J&.ke?purchaseacopy and read about Sammy Rafter, Jerome Bowdeng Johnny Lee Wifeen, Willie BenM Johnny~ Paul Penry, andthemarryothere whoxetories,are aoeensitively @trayed by Perske. Price: $10.95 through anY local bookstore, or contact: Annette Abcoc, Supervisor, Customer Serviuis, Abingdon Press, P.Cl. Box 801, Nashville, TN 37202.
Publications Cblldtm Today, ~eclef E+tiow Wdcomiq Chifdnn titi DlseMlitfes@ Across Amerfc8! Admini atrition for Chil&en and Famili&, Dep@tment of He@h and Human Services, (Volume 20, Number 2, 1991). Stories from across the country illustrate how children with disabilities am being includ@ in all aspects of f@ly and community life. Highlights suca?ss of famiiies, child care programs, p~ic schools, and community recreation programs `that actively integrate all children. `fhese stories provide valuable insight into what cxui be accomplished when families develop and relentlessly pursue a positive vision of what is pssible for their children. Guest authors include: Rud and Ann Tumbull, Naomi Karp, Valerie Bmdley, Jeff Stmlly, and many others. Price: $2.25. Refer to DHHS Publication No. (ACF)91 -30014, and order from: Superintendent of Documents, U.S. Government Printing ~lce, Washington, D.C., 2~02. ACatrfcbl~ 6ufd@ ior Trslning M&efal ffe@tb RtV8ssfoaak A MiWef for `-i*@ -M' ReWd8t10W Atentel Illness Intemnthn tihxw 10 Ekist/kg ConMunlty ~otel ffdth CderS, University Affiliated Cincinnati Center for Developmental Diadem, 1991. A product of amm-yearg rantfunded by the Administration on Developmen@l Disabilities,. intended for use by educators to prepare staff to serve individuals with lxith mental retardation and mental illness and their families. Emphasis is on close interagency collaboration. Extensive bibliography, 1980-19!J0. Cost: $50.00, payable to University Affiliated Cincinnati Center for Developmental Disorders, Interface Project, 3300 Elland Avenue, Cincinnati, Ohio 45229-2899. 513/559-4639. (Also availalie on loan from Lending Library, seepage 4.) Transition Strategies that M@: Profiles of Successful fflgh School hMJ& PrOMSmS, University of Minnesota and, the Dep@nent of Education. (1991). This publication highlights exemplary practices for improving the transition process and adult outcomes for secondary students with disabilities in Minnesota. Readers are encouraged to explore new options and adaptations to traditional approaches. Cost: $3.00 payable to University of Minnesota, c/o Institute cm Community Integration, 109 Pattee Hall, 150 Pillsbury Drive, SE, Minneapolis, MN 55455. 612/624-4512. STAR Program Publications Assistfve Technology o nd Ql&r MInnesotsas, 1991. Brochure describes a number of &vices and services that help older people maintain independence and productivity. Several items help in case of emergencies, such as cordless telephone and pocket tatker. Other uses of technology are noted regarding sensory aids, transportation and mobility, home modifications, and recreation and entertainment. Tremftfon snd AssM/ve Techno/o#yj 1991. Brochure highlights the impwtance of planning and uses of tihnology during transitions from home to pre-sdool and beyond. Lists of questions to,* and a number of resources are provided. Pdvate Refn?bursement of Assfstive leelmolo~ people wfth Ditibllftfes .81M tlie Pdvste hlswame ~ June 1991. Report by the Consumer Task Force on Insurance identiles problems regarding privatc,xeimbumement of assistive technology and lists recommendatimisf~ improvements: Free copies available from: Star Program, 300 Ceritennial Building,658 Cedar Street, St. Paul, MN 55155. 612/296-2771 (voice only), or 612/296-9962 (TDD only). Minnesota Awarded Federal Transition Grant `rile Minnesota DqEUUml t of Education has been awaded a fiveyear, system change grant from the Us. Department of Education to implement, "Statewide Strategies for Improving the Delivery of Transition Services for Youth with Disabilities and Families in Minnesota." Minnesota is one of 12 states selected to receive this competitive grant. Almost $500,000 will be awarded each year, with a total of almost $2.5 million over the next five years. Coopatm " gagencies include the Division of Rehabilitation Services and State Services for the Blind in the mmt of Jobs and Training and the Depmtment of Human Services. Major goals include: 1) improve state- level planning and policy &velopment; 2) inmease student and family participation in achieving successful transitions from school to work and community living; 3) create professional development opportunities; 4) demonstrate innovadve and effective program strategies; and 5) enhance professional and public awareness of the needs of youth with disabilities as rhey enter aduhhood. For more information, contact Stephanie Corbey, Interagency Office on Transition Services, 828 Capitol Square Building, 550 Cedar Street, St. Paul, MN 55101. 612/296-0280. Workshops on Youth Community Services `Ile Minnesota Office on Volunteer Services (MOVS) will hold workshops on the latest developments in the youth community service movemen~ entitled "Gearing Up for Youth Community Service." Attend one of the following: November 12, 1991--Moorhead, at Brown Hall Lounge, Concordm " College; November 13, 1991 --Anoka, Staff Development Center, Anoka-Hennepin School District, 2727 North ferry StreeC January 10, 1992, Red Wing Public Library, 225 Broadway Stnxx. ContacC MOVS, 500 Rice Stre@ St. Paul, MN 55155. 612/2%-4731 (Metro), or 1-800-652-9747 (Gmer Minnesota).
`ary The follOwingpublicatiom ar8avAabkforanlrsswssk loafl. The @custto the ttonowsristhstim poataw. A Curriculum Guide for Training MenAal Health Professionals: A Model for Developing Mental Retardatioril Mental Illness Intervention Services in Existing Commun;tg Meitil Health Centers, University AffiMcd Cirieinnati Center for Developmental Dimdera ,1991. (see description on Pa@ 3.) Discover the Possibilities: A Curriculum for Teaching Parents about lntegrath, ,PEAl&&uent Center, Colorado Springs, 1988. @o&?s Won, inform~n. ands*fqr inwgrated cIassroonlso " "' ""-'''"'"' .-">: ,. ,%$ Go For It! A Be&"'% s~rt and Recreation for Persons with Disabilities. J. D. Kelley & L. Frieden, Harcourt BraeeJovanovieh Publisher, 1989. Inspiratimud depiction of a bmadrange of aportandrccrczm "on activities available to people with disabilities. Whiner of 1989 Literary Award by National lkcreah "on and Park Association. Transition Strategies that Work: Profiles of Successfid High School Transition Programs, University of Minnesota and the ~tof ~n (1991). See description on page 3. Pediatric Residents Learn from Families A new program at the University of Mimesota allows for a fiit-hand look at the life, of a family with a child with speeial health needs. The `Parents as Teachers" program gives pediatric residents an opporhmity to make home visits and pariieipate briefly in the family life of a child or adolescent with a disability. Physicians in mining learn ftom families about the skills and competencies families ham &veloped in ~viding a nurturm " ghome environment whik?c aring for often complex medical conditions. The PaTents as Teaehers program is a joint effort between the Center for Children "with Chronic Illness and Disability, a program of rhe Division of Adolescent Health and General Pediatrics, University of Mitmesota, and the Collaboration Among Parents and Health Rofessionals (CAPP) at PACER Center in Minneapolis. Families choose yhat they would like the pedi@e resident teeqxwkme during his or her home visit. In the past year, one resident went to the child's school and obseawi an inclusive educational program. Gne resident learned how to bowl frc@ a teena@r. The family wanted the resident to appreciate how well a person with mental reta@ation functions in the community. Most residents agreed that they had gained more insight into the daily challenges of families. They also acknowledged that.parents were the experts bn their child @ their input was valuable in planning care for a child with special health needs. "All participants in the program, families and residents, agree it has been a valuable experience in bringing everyone closer and they are better equipped to work as a team," commented Celia Shapland, regional c oorciiMtor at PAc131+ Center. For more information, contact: Celia Shapland, Regional Tech~cal Assistance Coordinator, CAPP, Parent Advocacy Coalition for Educational Rights 4826, Chicago Avenue, South, Minneapolis, MN 5S417. 612/827-2%6 (voieeand'IDD). -Rudy DEPARTMENT OF ADMINISTRATION Governor's Planning Council on Developmental Di.sabilit~es 300 Centennial Qffice Building MB Cedar Street, St. Paul,MN 55155 Roger Strand. Editor S12/2%4018 612/2w4S62 100 First Class U.S. Postsge PAID Permit No. 171 St. Paul. MN O XRECTOlj GOVERNOR S PLANNING COUNCIL ON t3EV6 LOP MENTAL OX SA81L ITIES 3U0 CENTENNIAL SLOG ST PAUL MN 55155 ,'-? TIME OATEil MATERIAL (&&ec,dedmper
Fumrity Governor's Planning Council on Developmental Disabilities December, 1991 In Memory of Timothy M. Cook: His Words of Warning about ADA `edera' `rant `Ui'ds On October 21, 1991, Timothy Cook died of brain cancer. Tim had a physical disability and had been deemti, "infeasible for employment" by one of his eady voeatiom-d counselors. Undaunted by such judgments, he werit on with his life, received his B.A. and M.A. in American History from the University of Pennsylvania in 1975, and his J.D. at the University of Pennsylvania Law School in 1978. Up until his death, he was the executive director of the National Diyibility Action Center in Washington, D.C. and served on the Board of The Association for Persons with Severe Handicaps (TASH). A few quotes can be found in an article written while he was hospitalized. The article will be published in the Temple Law Review, Vol. 64:2 (1991), "The American with Disabilities Act of 1990: The Move to Integration": In United States V. University Hospital, State .Universit-y of New York, . . . Judge Winter observed that `Congress was persuaded that a handieappd condition is analogous to race,' and that `discrimination on the basis of handicap should be on a statutory par with discrimination on the basis of race.' Judge Winter accused ` the majority of essentially abrogating a legislative victory duly and fairly won by the disability community'--A judicial failure to follow the analogy where it leads is an outright disagreement with Congress' judgment. . . ` If Judge Winter's statements are taken to heart, there will be true enforcement of the ADA, and the regime of segregation and degradation on grounds of disability will be ended, `root and branch,' as Congress intended. However, if, by judicial or executive ilat, the ADA's desegregation man&te is watered down or abrogated, as has happened in section 504 enforcement, persons with disabilities will be deprived of their `fairly won political victory,' and will continue to be subjected to segregation and exclusion. As Justice Brandeis (Olmstead v. United States, 1928) once warned: Experience should teach us to be most on our guard to protect liberty when the Government's purposes are beneficent. Men born to freedom are naturally alert to repel invasion of their liberty by evil-minded rulers. The greatest dangers to liberty lurk in insidious encroachment by men of zeal, well-meaning but without understanding. Upon Natural Supports in Workplace Several Minnesota agencies will, participate in a demonstration project, "Minnesota's Model for Transition and Natural Supports in the Workplace for Students and Young Adults with Developmental Disabilities." Minnesota was one of six states to receive such a grant from the Department of Health and Human Services and the Department of Labor. The project will develop a systematic approach to aid in the seleetion of the most appropriate natural supports in a w~k setting for a particular student or young adul~ which can better assure successful, ongoing employment. Pticipating agencies include: PACER Center, Kaposia, inc., St. Paul Public Schools, Rise, Inc., Hennepin County Techniqal Collegei East Suburban Resources (Stillwater), Intermediate School District 916 (St. Paul), and Intermediate School District 287. Forest Lake Public Schools. The Institute on Community Integration at the University of Minnesota will conduct evaluation of the proj~t. For more information, contacc PACER Center, '4826 Chicago Avenue, Minneapolis, MN 55417. 612/827-2866. Employment Opportunity The University Affiliated Program (UAP) of the University of Illinois at Chicago is seeking applicants for two positions with the Midwest Center on Business and Disability. The Center recently reeeived five-year funding by the ` National Institute on Disability and Rehabilitation Research to facilitate the implementation of the Americans with Disabilities Act in the Great Lakes region. Positions to be filled include a project coordinator and a teehnical assistance speciitlist. Contact: David Braddoek, Ph. D., Professor and Director, University"of Illinois at Chicago UAP, 1640 West Roosevelt Road, Chicago, IL 60608. 312/413-1647. Inside This Issue... Kaposia Expands Services Home Accessibility FkUp Loans Commw?ityservke Tnining
Minnesota Deaf-Blind Association Seeks Volunteers Volunteer assistance is being sought by the Minnesota Deaf-Blind Association which will host the American Association of the Deaf-Blind Convention June 13-19, 1992, in St. Paul, Minnesota. Contact Deb Abts, Find, Inc., 630 Cedar Avenue South, #2104, Minneapolis, MN 55454. Retiring Next Year? Find out about Sociai Security, Now A 1990 legislative change that eliminated payment of retroactive benefits in most retirement claims increased the importance of contacting Social Security before retiring. It maybe to your advantage t~ have your Social Security benefits start inJanuary, even if you don't plan to retire until latei in the year. Undercurrent rules that affect how much a benetlciary can earn, many people can receive more benefits with an application that is effective in January. Call: 1-800-772-1213. Resources for Children with Biindness and Other Disabilities The Committee on the Blind Multi- handicapped Child (within the Division for Parents of Blind Chil&en of the National Federation of the Blind) provides a number of information sharing activities for parents and professionals. A network of people with common interests and concerns has been established, and a pCikdiC Up(klk of information, along with pertinent literature are distributed. Find answers to complex questions arising from situations where a child has blindness and other disabilities. Contacc Colleen Roth, Co-chair, Committee on the Blind Multihandieapped Child, 1912 Tracy Road, Northwood, Ohio 43619. 419/666-6212. Source: Future Reflections, Summer 1991, National Federation of the Blind. Home Accessibility Fix-Up Loans Available The 1991 Minnesota Legislature authorized the Minnesota Housing Finance Agency (MHFA) to establish a new program, the Fix-Up Fund Accessibility Loan Program (Minnesota Statute, section 462A.05), which offers home accessibility loans at below market interest rates. The intent is to provide coordinated funding resources to families or persons for whom accessibility modifications are necessary to continue to cam for a family member at home. Coordination between several funding sources is possible. There are situations where funding for adaptive modifications to the home, provided under Title XIX Home and Community-Based Services and Family Support grants, are not suff~ient to complete the work necessary. These funds can be coordinated with the Fix-Up Fund Accessibility Loan Program. To be eligible for a Fix-up Fund Accessibility Loan, the person with a disability must be certified by the county to be at risk of institutionalization. The loan applicimt then brings the certification to a bank or other len&r to apply for the loan. Those receiving or applying for waivered services under Title XIX may direct questions regarding the certification process to: Alex Henry, Developmental Disabilities Waiver Manager, 612/296-0939; Lynn Glockner, Community Alternatives for Disabled Individuals (CADI), 612/297-4669; Phyllis Zwieg, Community Alternative Care (CAC), 612/296-2916; or write to them at Department of Human Services, 444 Lafayette Road, St. Paul, MN 55155-3844. To receive a brochure, "MHFA Accessibility Improvement Loans", or request other information, contact: Terri Black, Minnesota Housing Finance Agency, 400 Sibley Street, St. Pti Minnesota 551.01., 612@96.-8275 ~ or 1-800-652-9747, toll-free. Events December 11=13, 1991 "Diverse Paths to Healing from Sexual Abuse" will provide training for service providers, sponsored by the Neighborhood Involvement Programs of Rape and Sexual Assault Center. The workshop will be held at Temple Israel, 2324 Emerson Avenue South, Minneapolis. "A Play about Healthy Sexuality" by Illusion Theater on Wednesday evening (December 11) is open to the public. For more information, contact: The Rape and Sexual Assault Center, 2431 Hennepin Avenue South, Minneapolis, MN 55405. January 23, 1992 "Comprehensive Oral-Motor and Language Programming for the High Risk Child: Medical Therapy Perspectives" is a conference for professionals and parents at Courage Center, 3915 Golden Valley Road, Golden Valley, MN 55422. 612/520-0407. February 24,1992 "Aging--Enhancing the Journey" is the theme of the Minnesota State Chapter of the American Association on Mental Retar&tion ( AAMR) conference to be held at the Minneapolis Metrodome Hilton. Contact: Bill Everett, 1918 19th Avenue, NE, Minneapolis, MN 55418. 6KV789-8841.
Publications You and I Tourette Syndram~ Informational Guide Provided by Tourette Syndrome Association, Minnesota Chapter. This brochure describes the symptoms associated with Tourette Syndrome (TS), a genetic, neurological disorder characterized by motor and vocal tics. Many children with TS have "associated" neuro-behavioral disorders, developmental delays, learning disabilities, and/or sensory motor integration probIems in addition to tics. Public awareness and understanding of this complex disorder are crucial for assuring that people with TS lead happy, productive lives. Copies of the brochure are available from the Governor's Planning Council on Developmental Disabilities, 612/296-4018 (voice), or 612/296-9962 (TDD only). Or, contact Tourette Syndrome Association, Minnesota Chapter, 375 Little Canada Road, Little Canada, Minnesota 55117. 612/481-8910. Compendium 1989-1991:.A Research Resource Manual, Center for Children with Chronic Illness and Disability, University of Minnesota, 1991. This 336-page manual lists and describes research projects funded between 1989 to the present focusing on children, youth, and families living with chronic illness and disabilities. Price: $19.95, payable to: The University of Minnesota. Mail to: Compendium, Center for Children with Chronic Illness and Disability, Box 721-UMHC, Hr&nrd Street at East River Road, Minneapolis, MN 55455. 612/626-4032. Your Place or Mine?A Handbook for Home Ownership, B. Laux & C. Moran-Laux, Creative Management Associates. This manual was sponsored by the Illinois Planning" Council on Developmental Disabilities, which established home ownership for people with developmental disabilities as a priority goal. Although written for people living in Illinois, similar information can' be researched and can apply to situations elsewhere. Renting and buying property are complicated, and this guide can help to solve and assist with the improvement of life for citizens with disabilities in their communities-- making informed decisions about where they live and about the people with whom they share their lives. Contact: Illinois Planning Council on Developmental Disabilities, 100 West Randolph 10-600, Chicago, IL 60601. 312/814-2080 (voice), or 312/814-7151 (TDD only). Training through Interaction at University The Institute on Community Integration has created an opportunity for students to volunteer or receive credit by participating in Community Service Training Program (CSTP). During the course of training, participants who do not have a disability will be matched with a person with a disability on the basis of common interests. Both partners will plan and carry out the activities of their own choosing. At the same time they will learn to use strategies to overcome many of the barriers to social integration within ~e community. Contact: Brian Abery, Institute on Community Integration, University of Minnesota, 107 Pattee Hall, 150 Pillsbury Drive, SE, Minneapolis, MN 55455. 612/625-5592. Car Seat Guidelines Available `I%e American Academy of Pediatrics has published "Car Seats for Growing Children: Guidelines for Counseling Parents on Which Type of Car Seat to Use," (Car Seat News, Fall 1990). Car seats provide protection from the types of injury with the worst consequences: head and spinal cord injuries. This two-page information sheet may be request@ from:" Governor's Planning Council on Developmental Disabilities, 300 Centennial Building, 658 Cedar Street, St. Paul, MN 55155. 612/296-9963 (voice), 612/296-9962 ~D). by Elairte Popovic.h I am a resident. You reside. I am admitt@. You move in. I have behavior problems. You are rude. I am noncompliant. You dbn't like being told what to do. When I ask you out to dinner, it is an outing. When you ask someone out, ii is a alzte. I don't know how many people have read the progress notes people write about me. I don't even know what is in there. You didn'r speak to your best fn-end for a month after they readyourjournal I make mistakes during my check writing program. Someday I might get a bank account. You forget to record withdrawals from your account." The bdnkcalls to remind you. I celebrated my birthday yesterday with 5 other residents and 2 staff members. I hope my family sends mea card. Your family threw you a surprise party. I am on a special diet because I am 5 pounds over my ideal body weight. Your doctor gave up telling you. I am learning household skills. You hate housework. I am learning leisure skills. Your shirt says you are a "couchpotato." My case manager and other professionals set goals for me for next year. You haven't &cided what you want out of li$e. Someday I will be discharged--maybe. You will move onward and upward. Sourca: MO TASH, The Missouri Chapter of the Association for Persons with Severe Handicaps, Elain Popovich works with Lutheran Schml Services in Midland, Missouri. Kaposia Expands Services With the creation of a project called "Kaposia Plus," Kaposia, Inc. in St. Paul will be providing services to individuals with severe disabilities and challenging behaviors. Kaposia.is a company specializing in supported employment. Services will be coordinated with county human services, the Division of Rehabilitation Services, and residential providers. Contacc Susan Schmidgall, Kaposia, inc., 380 East Lafayette Freeway South, St. Paul, MN 55107-1216. 612/'224-7249.
-ry The following publications am av~"kableforafhree-week loan. The oniyccdtothe borrower is the return postage. Publication: Unequal Justice? What can Happen When Persons with Retardation or other Developmental Disabilities Encounter the Criminal Justice System, Robert Perske, Abingdon Press, 1991. Experiences by individuals call for sensitive and assertive advocacy, early intervention, diversion, and alternatives to incarceration. (See feature article, I'Uovemker 1991, Futurity.) Publication: Disability in America: Toward a National Agenda for Prevention, A. M. Pope & A R. Tarlov (Eds.), Institute of Medicine, National Academy Press, 1991. The authors state, "The time has come for the nation to address disability as an issue tiat affects all Americans, one for which an investment in education, access to preventive services and technology, and the development of effective interventions could yield unprecedented returns in public health, personal achievement, and nationat productivity." Videotape (15 minutes): My Uncle Joe. A nephew's story about his uncle who is learning how to live independently after years of being institutionalized. Videotape (10 minutes): Be My Friend, Tourette Syndrome Association, Minnetita Chapter, promotes better understanding of Tourette syndrome, and provides illustrations of typical behaviors associated with this syndrome. For Garfield Fans by Patrick Mackan For those of you who are G@leld comic fans, you know that "Nermal" is a cute little kitten who occasionally visits. One &y, Nermal says to Garfield, You've got a pretty good lhin~ @ng here, don't YOU? Garileld, all comfy and cozy in his cat box and blanke~ replies, Yup. Jon feeds me, strokes me, changes my kitty litter and caters to my whims. Nerrnal then asks, So what does Jon get out of it? Gtileld nonchalantly answers, He gets to call himself `Master'. My favorite feline offers an important insight. We need teachers who me servant-friends not service-masters. A student is not a consumer; a teacher is not a professional service provider. A classroom is meant to be a community of interdependence between students themselves and students and teachers. It is in relationships that we grow and develop, learn and become wise. A classroom as a community of interdependence easily welcomes all children as having gifts an~ talents. This article comes from a new release, Rejlec(ions on Inclusive Education, by Patrick Mackan, Inclasion Press, 1991. Father Mackan, a priest with the Resurmct.ion Order, died suddenly on November 23, 1990. His "reflections" were edited by Jack Pearpoint and Marsha Forest for publication. To purchase a copy, send $12.00 payable to: Inclusion Press, 24 Theme Crescent, Toronto, Ontario M6H 2S5, Canada. Telephone: 416/658-5363. TRurilY Bulk Rate US, Postage -d DEPARTMENT OF ADMINISTRATION Governor's Planning Council on Developmental Disabilities 300 Centennial Office Building !358 Cedar Street, St. Paul, MN 55155 Roger Strand. Editor 612/296-4618 612/296-9962 TOO Paid Permit No. 171 St. Paul, MN @i?%&' @ recycklpaper
